Contextualising an online mindfulness-based intervention for young people with cancer: A qualitative study

被引:1
|
作者
Pathrose, Sheeja Perumbil [1 ]
Wells, Jonny [2 ]
Patterson, Pandora [3 ,4 ,5 ]
Mcdonald, Fiona [6 ]
Everett, Bronwyn [7 ]
Ussher, Jane [8 ]
Salamonson, Yenna [7 ]
Biegel, Gina M. [9 ]
Nguyen, Tho [10 ]
Ramjan, Lucie [1 ]
机构
[1] Western Sydney Univ, Sch Nursing & Midwifery, Locked Bag 1797, Penrith, NSW 2751, Australia
[2] Univ Technol Sydney, Fac Arts & Social Sci, Sydney, Australia
[3] Community First Step, 25 Barbara st Fairfield, Sydney, NSW 2165, Australia
[4] Sydney Univ King St, Canc Nursing Res Unit, Newtown, NSW, Australia
[5] Coventry Univ, Fac Hlth Life Sci, Coventry, England
[6] Univ Sydney, Canc Nursing Res Unit, 75 King St, Newtown, NSW 2042, Australia
[7] Univ Wollongong, Fac Sci Med & Hlth, Sch Nursing, Wollongong, Australia
[8] Western Sydney Univ, Womens Hlth Psychol Translat Hlth Res Inst THRI, Sch Med, Locked Bag 1797, Penrith, NSW 2751, Australia
[9] Stressed Teens, Campbell, CA USA
[10] Western Sydney Univ, Sch Med, Sydney, Australia
关键词
Mindfulness; Young people with cancer; Online intervention; ADULT CANCER; ADOLESCENT; ACCEPTABILITY; FEASIBILITY;
D O I
10.1016/j.colegn.2023.11.005
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background: Despite improved prognosis, living with cancer can still negatively impact young people's psychosocial well-being. Mindfulness-based interventions (MBI) have been shown to help manage cancerrelated stress but tailored interventions for young people are warranted. In addition, attendance at intensive face-to-face MBI is often a barrier to access and adherence. Aim: This study aims to contextualise an online MBI, for young people with cancer (YPWC). Methods: This study modified an online MBI using a qualitative research approach through several phases, including a discussion with experts, a workshop with YPWC (n = 6), followed by focus groups with health professionals (n = 5) and YPWC (n = 7). Findings: The qualitative thematic analysis of data from the workshop discussion and focus groups identified two key themes, which were (i) developing mindfulness skill and adopting into daily living and appropriateness; and (ii) accessibility of design and delivery of an MBI eBook. The participants in the workshop and focus group provided various recommendations and as a result of these data, the modules were modified and further tailored both at the design level and the module contents. Discussion: This study contextualised a self-directed, online MBI through the participation from YPWC and healthcare providers. This participatory approach enabled the development of a young people friendly intervention that incorporated cancer-focused case studies with mindful reflections, all of which were wellreceived by YPWC. Conclusion: The involvement of end-users in the development phase significantly improved the acceptability of this intervention design. The tailored MBI potentially aids the psychosocial well-being of YPWC. (c) 2023 Australian College of Nursing Ltd. Published by Elsevier Ltd. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
引用
收藏
页码:56 / 62
页数:7
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