How Adolescents and Young Adults with Cancer Experience an Age-Appropriate Intervention When Undergoing Treatment in Adult Surgery Clinics: A Qualitative Study
Purpose: Despite growing international attention, few interventions specifically target adolescents and young adults (AYAs) with cancer even though appropriate interventions may improve care delivery during cancer treatment. The study's purpose was to explore how AYAs with cancer experience an age-appropriate intervention when undergoing treatment in adult surgery clinics.Methods: Twenty AYAs with cancer, aged 18-29 years, from five surgery clinics at Copenhagen University Hospital Rigshospitalet participated in an intervention consisting of three main components: care provided by trained youth coordinator nurses (YCNs) to the greatest extent possible; a 1-hour one-on-one conversation with a YCN during hospitalization; and a postdischarge phone call. Semistructured interviews were used to collect data, which were analyzed in a stepwise process based on inductive content analysis.Results: Three themes were identified: a beacon in the dark; from patient to person; and the caring check-up. Participants felt safe and experienced a sense of presence and a caring environment in a significant and trusting relationship with YCNs, which encouraged them to share thoughts, feelings, and needs they previously had kept silent about. The one-on-one conversations helped them begin reflecting and in emotional processing and the postdischarge phone call was perceived as a caring check-up.Conclusions: The study shows how an age-appropriate intervention was experienced overall as meaningful for the participants hospitalized in adult surgery clinics, but more research is required to further examine the significance and effect of interventions that target AYAs with cancer.
机构:
Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, EnglandUniv Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Fern, Lorna A.
Taylor, Rachel M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Coll London Hosp NHS Fdn Trust, Canc Clin Trials Unit, London NW1 2PG, England
London S Bank Univ, Dept Childrens Nursing, London, EnglandUniv Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Taylor, Rachel M.
Whelan, Jeremy
论文数: 0引用数: 0
h-index: 0
机构:
Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, EnglandUniv Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Whelan, Jeremy
Pearce, Susie
论文数: 0引用数: 0
h-index: 0
机构:
Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, EnglandUniv Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Pearce, Susie
Grew, Tom
论文数: 0引用数: 0
h-index: 0
机构:Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Grew, Tom
Brooman, Katie
论文数: 0引用数: 0
h-index: 0
机构:Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Brooman, Katie
Starkey, Carol
论文数: 0引用数: 0
h-index: 0
机构:Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Starkey, Carol
Millington, Hannah
论文数: 0引用数: 0
h-index: 0
机构:Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Millington, Hannah
Ashton, James
论文数: 0引用数: 0
h-index: 0
机构:Univ Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
Ashton, James
Gibson, Faith
论文数: 0引用数: 0
h-index: 0
机构:
London S Bank Univ, Dept Childrens Nursing, London, England
Great Ormond St Hosp Children NHS Fdn Trust, London, EnglandUniv Coll London Hosp NHS Fdn Trust, Dept Oncol, London NW1 2PG, England
机构:
H Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Crowder, Sylvia L. L.
Sauls, Rachel
论文数: 0引用数: 0
h-index: 0
机构:
Univ S Florida, Coll Publ Hlth, Tampa, FL 33620 USA
H Lee Moffitt Canc Ctr & Res Inst, Nontherapeut Res Operat, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Sauls, Rachel
Gudenkauf, Lisa M. M.
论文数: 0引用数: 0
h-index: 0
机构:
H Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Gudenkauf, Lisa M. M.
James, Christy
论文数: 0引用数: 0
h-index: 0
机构:
H Lee Moffitt Canc Ctr & Res Inst, Nontherapeut Res Operat, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
James, Christy
Skinner, Amber
论文数: 0引用数: 0
h-index: 0
机构:
H Lee Moffitt Canc Ctr & Res Inst, Adolescent & Young Adult Program, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Skinner, Amber
Reed, Damon R. R.
论文数: 0引用数: 0
h-index: 0
机构:
H Lee Moffitt Canc Ctr & Res Inst, Adolescent & Young Adult Program, Tampa, FL 33612 USA
H Lee Moffitt Canc Ctr & Res Inst, Dept Individualized Canc Management, Tampa, FL 33612 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Reed, Damon R. R.
Stern, Marilyn
论文数: 0引用数: 0
h-index: 0
机构:
H Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
Univ S Florida, Coll Behav & Community Sci, Tampa, FL 33620 USAH Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL 33612 USA
机构:
Yonsei Univ, Coll Nursing, Brain Korea FOUR Project 21, Seoul, South KoreaYonsei Univ Hlth Syst, Yonsei Canc Ctr, Dept Pediat Hematol Oncol, Seoul, South Korea
Yun, Hyeseon
论文数: 引用数:
h-index:
机构:
Lyu, Chuhl Joo
论文数: 引用数:
h-index:
机构:
Han, Jung Woo
Hahn, Seung Min
论文数: 0引用数: 0
h-index: 0
机构:
Yonsei Univ Hlth Syst, Yonsei Canc Ctr, Dept Pediat Hematol Oncol, Seoul, South Korea
Yonsei Univ Coll Med, Dept Pediat, Seoul, South KoreaYonsei Univ Hlth Syst, Yonsei Canc Ctr, Dept Pediat Hematol Oncol, Seoul, South Korea
Hahn, Seung Min
论文数: 引用数:
h-index:
机构:
Jung, Minkyu
Rha, Sun Young
论文数: 0引用数: 0
h-index: 0
机构:
Yonsei Univ Coll Med, Yonsei Canc Ctr, Dept Internal Med, Div Med Oncol, Seoul, South Korea
Yonsei Univ Coll Med, Grad Sch Med Sci, Dept Internal Med, Brain Korea Project 21, Seoul, South KoreaYonsei Univ Hlth Syst, Yonsei Canc Ctr, Dept Pediat Hematol Oncol, Seoul, South Korea
Rha, Sun Young
论文数: 引用数:
h-index:
机构:
Beom, Seung-Hoon
Lee, Choong-Kun
论文数: 0引用数: 0
h-index: 0
机构:
Yonsei Univ Coll Med, Yonsei Canc Ctr, Dept Internal Med, Div Med Oncol, Seoul, South KoreaYonsei Univ Hlth Syst, Yonsei Canc Ctr, Dept Pediat Hematol Oncol, Seoul, South Korea