Telemedicine for Individuals with epilepsy: Recommendations from the International League Against Epilepsy Telemedicine Task Force

被引:12
|
作者
Samia, Pauline [1 ,9 ,34 ]
Sahu, Jitendra Kumar [2 ]
Ali, Amza [3 ,4 ]
Caraballo, Roberto Horacio [5 ]
Chan, Josephine [6 ,7 ]
Coan, Ana Carolina [8 ]
Fortini, Pablo Sebastian
Gwer, Samson [10 ,11 ,12 ,13 ]
Jocic-Jakubi, Bosanka [14 ]
Kissani, Najib [15 ,16 ]
Rivera, Yanin [17 ]
Sarfo, Fred Stephen [18 ]
Singh, Mamta Bhushan [19 ]
Trinka, Eugen [20 ,21 ,22 ,23 ,24 ]
Yoo, Ji Yeoun [25 ]
Yu, Hsiang-Yu [26 ,27 ,28 ]
Zelano, Johan [29 ,30 ,31 ]
Cross, J. Helen [32 ,33 ]
机构
[1] Aga Khan Univ, Med Coll, Dept Paediat & Child Hlth, Nairobi, Kenya
[2] Univ Ghent, Aga Khan Univ, Brain & Mind Inst, Dept Publ Hlth & Primary Care, Ghent, Belgium
[3] Postgrad Inst Med Educ & Res, Pediat Neurol Unit, Chandigarh 160012, India
[4] Univ West Indies, Biotech Res & Dev Inst, Mona 99999, Jamaica
[5] Psyence Grp, Toronto, ON M5J 2J1, Canada
[6] Hosp Pediat Prof Dr Juan P Garrahan, Dept Neurol, Buenos Aires, Argentina
[7] Hosp Pediat JP Garrahan, Dept Neurol, Buenos Aires, Argentina
[8] WA Adult Epilepsy Serv, Perth, WA, Australia
[9] Univ Estadual Campinas, Dept Neurol, Child Neurol Serv, Campinas, SP, Brazil
[10] Univ Estadual Campinas, Brazilian Inst Neurosci & Neurotechnol, BRAINN, Campinas, SP, Brazil
[11] Hosp Pediat Prof Dr Juan P Garrahan, Buenos Aires, Argentina
[12] Afya Res Africa, Res & Evidence Dept, Nairobi, Kenya
[13] Kenyatta Univ, Sch Med, Nairobi, Kenya
[14] Sultan Qaboos Univ Hosp, Child Hlth Dept, Muscat, Oman
[15] Mohammed VI Univ Med Ctr Marrakesh, Neurol Dept, POB 2360, Marrakech, Morocco
[16] Cadi Ayyad Univ, Fac Med & Pharm Marrakesh, Neurosci Res Lab, POB 7010, Marrakech, Morocco
[17] Clin Med Alta Especial Satelite, Naucalpan, Mexico
[18] Kwame Nkrumah Univ Sci & Technol, Dept Med, Neurol Div, Kumasi, Ghana
[19] All India Inst Med Sci, Dept Neurol, New Delhi, India
[20] Christian Doppler Med Ctr, Dept Neurol, Neurol Intens Care & Neurorehabil, Salzburg, Austria
[21] Paracelsus Med Univ, EpiCARE, European Reference Network, Salzburg, Austria
[22] Paracelsus Med Univ, Neurosci Inst, Christian Doppler Med Ctr, Salzburg, Austria
[23] UMIT Univ Hlth Sci Med Informat & Technol, Dept Publ Hlth Hlth Serv Res & Hlth Technol Assess, Hall In Tirol, Austria
[24] Karl Landsteiner Inst Neurorehabil & Space Neurol, Salzburg, Austria
[25] Icahn Sch Med Mt Sinai, Dept Neurol, New York, NY USA
[26] Taipei Vet Gen Hosp, Neurol Inst, Dept Neurol, Taipei, Taiwan
[27] Natl Yang Ming Chiao Tung Univ, Inst Brain Sci, Brain Res Ctr, Taipei, Taiwan
[28] Natl Yang Ming Chiao Tung Univ, Sch Med, Taipei, Taiwan
[29] Gothenburg Univ, Inst Neurosci & physiol, Sahlgrenska Acad, Dept Clin Neurosci, Gothenburg, Sweden
[30] Sahlgrens Univ Hosp, Dept Neurol, Gothenburg, Sweden
[31] Gothenburg Univ Sweden, Wallenberg Ctr Mol & Translat Med, Gothenburg, Sweden
[32] Great Ormond St Hosp Sick Children, Great Ormond St, London WC1N 3JH, England
[33] UCL, Great Ormond St Inst Child Hlth ICH, 30 Guilford St, London WC1N 1EH, England
[34] Aga Khan Univ, Med Coll, Dept Paediat & Child Hlth, East Tower Block,Fourth Floor, Nairobi, Kenya
来源
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY | 2023年 / 106卷
关键词
Epilepsy; Telemedicine; Treatment gap; Teleneurology; SUDDEN UNEXPECTED DEATH; COVID-19; NEUROLOGY; TELENEUROLOGY; CHILDREN; QUESTIONNAIRE; MANAGEMENT; DISORDER; SUDEP;
D O I
10.1016/j.seizure.2023.02.005
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Worldwide, People with Epilepsy (PWE) are confronted with several barriers to face-to-face consultations. These obstacles hamper appropriate clinical follow-up and also increase the treatment gap for Epilepsy. Telemedicine holds the potential to enhance management as follow-up visits for PWE are focused on more on clinical history and counselling rather than physical examination. Besides consultation, telemedicine can also be used for remote EEG diagnostics and tele-neuropsychology assessments. In this article, the Telemedicine Task Force of the In-ternational League Against Epilepsy (ILAE) outlines recommendations regarding optimal practice in utilizing in the management of individuals with epilepsy. We formulated recommendations for minimum technical re-quirements, preparing for the first tele-consultation and the specificities for follow-up consultations. Special considerations are necessary for specific populations, including paediatric patients, patients who are not conversant with tele-medicine and those with intellectual disability. Telemedicine for individuals with epilepsy should be vigorously promoted with the aim of improving the quality of care and ultimately reduce the wide clinician access related treatment gap across several regions of the globe. of Epilepsy EEG diagnostics and tele-neuropsychology assessments. In this article, the Telemedicine Task Force of the In-ternational League Against Epilepsy (ILAE) outlines recommendations regarding optimal practice in utilizing in the management of individuals with epilepsy. We formulated recommendations for minimum technical re-quirements, preparing for the first tele-consultation and the specificities for follow-up consultations. Special considerations are necessary for specific populations, including paediatric patients, patients who are not conversant with tele-medicine and those with intellectual disability. Telemedicine for individuals with epilepsy should be vigorously promoted with the aim of improving the quality of care and ultimately reduce the wide clinician access related treatment gap across several regions of the globe.
引用
收藏
页码:85 / 91
页数:7
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