Is there a role for citizen science in death and dying research?

被引:0
|
作者
Wilkinson, Clare [1 ]
Llewellyn, Alison [2 ,3 ]
Mccabe, Candy [2 ,3 ]
机构
[1] Univ West England, Coll Hlth Sci & Soc, Sci Commun Unit, Bristol, England
[2] Univ West England, Coll Hlth Sci & Soc, Ctr Hlth & Clin Res, Bristol, England
[3] Dorothy House Hosp, Winsley, England
关键词
hospice; death; dying; end-of-life care; public engagement; citizen science; PALLIATIVE CARE; SOCIAL-SCIENCE; HOSPICE; END; COMMUNICATION; HEALTH;
D O I
10.3389/fpubh.2023.1241239
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of digital media for information and support. Public engagement can provoke a two-way conversation between researchers and the public and includes techniques that can engage the community not only with the topic but also in research. This perspective article considers the potential role of citizen science in death and dying research, including considerations around its potential benefits and constraints.
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页数:6
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