Data standards in pediatric oncology: Past, present, and future

被引:2
|
作者
Wyatt, Kirk D. D. [1 ]
Noyd, David H. H. [2 ]
Wood, Nicole M. M. [3 ,4 ]
Phillips, Charles A. A. [5 ,6 ,7 ]
Miller, Tamara P. P. [8 ,9 ]
Rubin, Elyssa M. M. [10 ]
Winestone, Lena E. E. [11 ]
Waanders, Angela J. J. [12 ,13 ]
Perentesis, John P. P. [14 ,15 ]
Aplenc, Richard [5 ]
机构
[1] Sanford Hlth, Div Pediat Hematol Oncol, Roger Maris Canc Ctr, Fargo, ND 58104 USA
[2] Univ Oklahoma, Dept Pediat, Hlth Sci Ctr, Oklahoma City, OK USA
[3] Childrens Mercy Kansas City, Dept Hematol Oncol, Kansas City, MO USA
[4] Childrens Mercy Kansas City, Dept Hlth Informat & Technol, Kansas City, MO USA
[5] Childrens Hosp Philadelphia, Div Oncol, Philadelphia, PA USA
[6] Univ Penn, Dept Pediat, Perelman Sch Med, Philadelphia, PA USA
[7] Childrens Hosp Philadelphia, Dept Biomed & Hlth Informat, Philadelphia, PA USA
[8] Childrens Healthcare Atlanta, Aflac Canc & Blood Disorders Ctr, Atlanta, GA USA
[9] Emory Univ, Dept Pediat, Atlanta, GA USA
[10] Childrens Hosp Orange Cty, Hundai Canc Inst, Orange, CA USA
[11] Univ Calif San Francisco, Dept Pediat, Div Allergy Immunol & BMT, Benioff Childrens Hosp, San Francisco, CA USA
[12] Ann & Robert H Lurie Childrens Hosp Chicago, Div Hematol Oncol Neurooncol & Stem Cell Transplan, Chicago, IL USA
[13] Northwestern Univ, Dept Pediat, Feinberg Sch Med, Chicago, IL USA
[14] Cincinnati Childrens Hosp, Canc & Blood Dis Inst, Cincinnati, OH USA
[15] Univ Cincinnati, Dept Pediat, Coll Med, Cincinnati, OH USA
关键词
clinical informatics; pediatric oncology; CANCER; PLATFORM;
D O I
10.1002/pbc.30128
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
In this commentary, we highlight the central role that data standards play in facilitating data-driven efforts to advance research in pediatric oncology. We discuss the current state of data standards for pediatric oncology and propose five steps to achieve an improved future state with benefits for clinicians, researchers, and patients.
引用
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页数:6
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