Measures for Persons with Spinal Cord Injury to Monitor Their Transitions in Care, Health, Function, and Quality of Life Experiences and Needs: A Protocol for Co-Developing a Self-Evaluation Tool

被引：0

作者：

Burns, Katharina Kovacs ^{[1
,2
]}

Bhatia, Zahra ^{[3
]}

Gill, Benveet ^{[4
]}

van der Nest, Dalique ^{[5
]}

Knox, Jason ^{[6
]}

Mouneimne, Magda ^{[6
]}

Buck, Taryn ^{[7
]}

Charbonneau, Rebecca ^{[8
]}

Aiello, Kasey ^{[9
]}

Sanchez, Adalberto Loyola ^{[10
,11
]}

Kamran, Rija ^{[12
]}

Olayinka, Olaleye ^{[10
]}

Ho, Chester ^{[7
,10
]}

机构：

[1] Alberta Hlth Serv, Clin Qual Metr Primary Data Support, Data & Analyt, Edmonton, AB T5J 3E4, Canada

[2] Univ Alberta, Sch Publ Hlth, Edmonton, AB T6G 1C9, Canada

[3] Spinal Cord Injury Alberta, Calgary, AB T2H 1H7, Canada

[4] ReYu Paralysis Recovery Ctr, Edmonton, AB T5S 1G8, Canada

[5] Alberta Hlth Serv, Slave Lake Healthcare Ctr North Zone, Slave Lake, AB T0G 2A2, Canada

[6] Foothills Med Ctr, Tertiary Neurorehabil, Calgary, AB T2N 2T9, Canada

[7] Glenrose Rehabil Hosp, Edmonton, AB T5G 0B7, Canada

[8] Foothills Med Ctr, Phys Med & Rehabil, Calgary, AB T2N 2T9, Canada

[9] Foothills Med Ctr, Patient Liaison Neurosci, Calgary, AB T2N 2T9, Canada

[10] Univ Alberta, Fac Med & Dent, Div Phys Med & Rehabil, Edmonton, AB T6G 2S2, Canada

[11] Glenrose Rehabil Hosp, Dept Clin Neurosci, Edmonton, AB T5G 0B7, Canada

[12] Univ Alberta, Fac Rehabil Med, Edmonton, AB T6G 2M7, Canada

来源：

HEALTHCARE | 2024年 / 12卷 / 05期

基金：

加拿大健康研究院;

关键词：

protocol; self-evaluation measures; persons with spinal cord injury; transitions in care; health changes; function changes; quality of life; mixed methods; modified Delphi; tool co-development; COMMUNITY PARTICIPATION; PEOPLE; SATISFACTION; DEPRESSION; SERVICE;

D O I：

10.3390/healthcare12050527

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert stakeholders initially exploring and selecting existing measures or tools through a modified Delphi process, followed by choosing one of two options. The options were to either support the use of the 10 selected tools from the Delphi method or to co-develop one unique condensed tool with relevant measures to evaluate all four domains. The stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers. This includes any issues with care or support they needed to address at the time of discharge from acute care or rehabilitation and in the community at 3, 6, and 12 months or longer post-discharge. Once developed, the tool was made available online for the final stage of the protocol, which proposes that the tool be reliability tested prior to its launch, followed by validation testing by PwSCI.

引用

页数：17

共 1 条

[1] An Economic Analysis of the Association Among Secondary Health Conditions , Health Care Costs, and Quality of Life for Persons With Spinal Cord Injury
Mitton, Craig
Dionne, Francois
Fallah, Nader
Noonan, Vanessa K.
[J]. TOPICS IN SPINAL CORD INJURY REHABILITATION, 2023, 29 (03) : 80 - 88

← 1 →