Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators

被引:4
|
作者
Heffernan, Marie E. [1 ,2 ]
Barrera, Leo [2 ]
Guzman, Zecilly R. [2 ]
Golbeck, Emily [2 ]
Jedraszko, Aneta M. [3 ]
Hays, P. Toddie [4 ]
Herzog, Keith A. [4 ]
D'Aquila, Richard T. [4 ,5 ]
Ison, Michael G. [4 ,6 ]
Mccolley, Susanna A. [4 ,7 ]
机构
[1] Northwestern Univ, Ann & Robert H Lurie Childrens Hosp Chicago, Feinberg Sch Med, Dept Pediat, Chicago, IL 60611 USA
[2] Ann & Robert H Lurie Childrens Hosp Chicago, Stanley Manne Childrens Res Inst, Mary Ann & J Milburn Smith Child Hlth Outcomes Res, Chicago, IL 60611 USA
[3] Ann & Robert H Lurie Childrens Hosp Chicago, Dept Pediat Neonatol, Chicago, IL USA
[4] Northwestern Univ, Clin & Translat Sci Inst NUCATS, Chicago, IL USA
[5] Northwestern Univ, Feinberg Sch Med, Dept Med Infect Dis, Chicago, IL USA
[6] NIAID, Resp Dis Branch, Rockville, MD USA
[7] Northwestern Univ, Ann & Robert H Lurie Childrens Hosp Chicago, Feinberg Sch Med, Dept Pediat Pulm & Sleep Med, Chicago, IL USA
基金
美国国家卫生研究院;
关键词
Research recruitment; research participation; special populations; underrepresented groups; clinical research coordinators; research equity; clinical trials; MINORITY PARTICIPATION; TRIALS; PROFESSIONALS; POPULATIONS; TERMINATION; BIAS; CARE;
D O I
10.1017/cts.2023.611
中图分类号
R-3 [医学研究方法]; R3 [基础医学];
学科分类号
1001 ;
摘要
Background:Insufficient recruitment of groups underrepresented in medical research threatens the generalizability of research findings and compounds inequity in research and medicine. In the present study, we examined barriers and facilitators to recruitment of underrepresented research participants from the perspective of clinical research coordinators (CRCs).Methods:CRCs from one adult and one pediatric academic medical centers completed an online survey in April-May 2022. Survey topics included: participant language and translations, cultural competency training, incentives for research participation, study location, and participant research literacy. CRCs also reported their success in recruiting individuals from various backgrounds and completed an implicit bias measure.Results:Surveys were completed by 220 CRCs. CRCs indicated that recruitment is improved by having translated study materials, providing incentives to compensate participants, and reducing the number of in-person study visits. Most CRCs had completed some form of cultural competency training, but most also felt that the training either had no effect or made them feel less confident in approaching prospective participants from backgrounds different than their own. In general, CRCs reported having greater success in recruiting prospective participants from groups that are not underrepresented in research. Results of the implicit bias measure did not indicate that bias was associated with intentions to approach a prospective participant.Conclusions:CRCs identified several strategies to improve recruitment of underrepresented research participants, and CRC insights aligned with insights from research participants in previous work. Further research is needed to understand the impact of cultural competency training on recruitment of underrepresented research participants.
引用
收藏
页数:8
相关论文
共 50 条
  • [1] IDENTIFYING CLINICAL RESEARCH COORDINATORS' RECRUITMENT BARRIERS AND BEST PRACTICES
    Rivera, J.
    Haley, S.
    Southwick, L.
    Parikh, N.
    Boden-Albala, B.
    [J]. INTERNATIONAL JOURNAL OF STROKE, 2016, 11 (SUPP 3) : 143 - 143
  • [2] Barriers and Strategies for Recruitment of Racial and Ethnic Minorities: Perspectives from Neurological Clinical Research Coordinators
    Sean J. Haley
    Lauren E. Southwick
    Nina S. Parikh
    Jazmin Rivera
    Dorothy Farrar-Edwards
    Bernadette Boden-Albala
    [J]. Journal of Racial and Ethnic Health Disparities, 2017, 4 : 1225 - 1236
  • [3] Barriers and Strategies for Recruitment of Racial and Ethnic Minorities: Perspectives from Neurological Clinical Research Coordinators
    Haley, Sean J.
    Southwick, Lauren E.
    Parikh, Nina S.
    Rivera, Jazmin
    Farrar-Edwards, Dorothy
    Boden-Albala, Bernadette
    [J]. JOURNAL OF RACIAL AND ETHNIC HEALTH DISPARITIES, 2017, 4 (06) : 1225 - 1236
  • [4] Perspectives of clinical research coordinators on disclosing financial conflicts of interest to potential research participants
    Friedman, Joeelle Y.
    Sugarman, Jeremy
    Dhillon, Jatinder K.
    DePuy, Venita
    Pierre, Christine K.
    Dinan, Michaela A.
    Allsbrook, Jennifer S.
    Schulman, Kevin A.
    Weinfurt, Kevin P.
    [J]. CLINICAL TRIALS, 2007, 4 (03) : 272 - 278
  • [5] Clinical Research Coordinators' Barriers and Best Practices to Minority Recruitment in Stroke Clinical Trials
    Rivera, Jazmin
    Southwick, Lauren
    Parikh, Nina S.
    Haley, Sean
    Boden-Albala, Bernadette
    [J]. STROKE, 2016, 47
  • [6] Research Staff Perspectives on Cancer Clinical Trials and Barriers to Recruitment: A Qualitative Research
    Keruakous, Amany R.
    Day, Silas
    Garcia-Ramiu, Kenny
    Yarbrough, Melissa
    Asch, Adam S.
    [J]. CUREUS JOURNAL OF MEDICAL SCIENCE, 2021, 13 (08)
  • [7] Barriers and facilitators to recruitment in mental health services: Care coordinators' expectations and experience of referring to a psychosis research trial
    Bucci, Sandra
    Butcher, Isabelle
    Hartley, Samantha
    Neil, Sandra T.
    Mulligan, John
    Haddock, Gillian
    [J]. PSYCHOLOGY AND PSYCHOTHERAPY-THEORY RESEARCH AND PRACTICE, 2015, 88 (03) : 335 - 350
  • [8] Barriers and Facilitators to Staff Recruitment and Retention for ACT Teams: Perspectives of Staff and Participants
    Tepper, Miriam C.
    Le Beau, Mariah
    Clark, Gary
    Thorning, Helle
    Pope, Leah G.
    [J]. JOURNAL OF BEHAVIORAL HEALTH SERVICES & RESEARCH, 2024, 51 (04): : 499 - 515
  • [9] Barriers and facilitators to recruiting minorities into clinical trials: Research staff perspectives
    Serrano, Mayra
    Kittles, Rick
    Burnham, Leanne
    Ashing, Kimlin T.
    Galloway, Dorothy
    Guardado, Danielle
    [J]. CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION, 2023, 32 (01) : 184 - 185
  • [10] Perceived Barriers to the Recruitment and Retention of Underrepresented Racial and Ethnic Groups (URGs) in Clinical Research
    McNamara, Victoria
    Smith, Elise
    Tumilty, Emma
    [J]. JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2024, 19 (1-2) : 74 - 75