Genetic Privacy

被引:0
|
作者
Ajunwa, Ifeoma [1 ]
Briscoe, Forrest [2 ]
机构
[1] Emory Sch Law, Law, Atlanta, GA 30322 USA
[2] Cornell Univ, ILR Sch, Ithaca, NY USA
关键词
CONFIDENTIALITY; DISCRIMINATION;
D O I
暂无
中图分类号
D9 [法律]; DF [法律];
学科分类号
0301 ;
摘要
The last decade has brought many technological advances to genetic testing. Increasingly, genetic testing, which was previously reserved for clinical or medical settings, has made its way to other spaces. Most significantly, we are now seeing the re-introduction of genetic testing to the workplace. Although the Genetic Information genetic testing in the workplace, genetic testing, as part of workplace wellness programs, is lawful under the aegis of the Affordable Care Act (ACA). This poses a threat to genetic privacy in the workplace. While some, like the actor Angelina Jolie, who credits genetic testing with her choice to undergo a double mastectomy and oophorectomy after discovering she carried the BRCA mutated gene, and Chris Hemsworth, who stepped away from acting after genetic testing revealed his genetic propensity for Alzheimer's disease, see genetic testing as affording agency, others see any type of genetic testing as raising the specter of eugenics and genetic discrimination. Genetic data, which is unique, personal, and yet communal, stretches the limits of existing legal protections for workers' privacy. This Article offers an analysis of the legal history and challenges associated with genetic testing, especially in the workplace. The Article provides an overview of the limited state-bystate protections afforded to subjects of genetic testing as well as the scant national regulation of genetic testing companies. The Article then sets forth five legal policy recommendations for regulating genetic privacy in the workplace, such as (1) Opportunity Commission (EEOC) for when genetic discrimination could give rise to genetic testing under workplace wellness programs is "murky" and should be treated as limited consent; (4) expanding FDA oversight over genetic testing; and (5) the promulgation of more stringent rules for the protection of genetic data.
引用
收藏
页数:39
相关论文
共 50 条
  • [1] Genetic privacy
    Nature, 2013, 493 : 451 - 451
  • [2] Genetic privacy
    Sankar, P
    ANNUAL REVIEW OF MEDICINE-SELECTED TOPICS IN THE CLINICAL SCIENCES, 2003, 54 : 393 - 407
  • [3] Genetic privacy
    不详
    NATURE, 2013, 493 (7433) : 451 - 451
  • [4] Genetic privacy
    Stephenson, Joan
    JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2008, 300 (15): : 1752 - 1752
  • [5] Genetic privacy
    Gostin, LO
    JOURNAL OF LAW MEDICINE & ETHICS, 1995, 23 (04): : 320 - 330
  • [6] Medical and genetic privacy
    不详
    JOURNAL OF THE NATIONAL MEDICAL ASSOCIATION, 2000, 92 (10) : A13 - A14
  • [7] Protecting genetic privacy
    Patricia A. Roche
    George J. Annas
    Nature Reviews Genetics, 2001, 2 : 392 - 396
  • [8] The jurisprudence of genetic privacy
    McGleenan T.
    Medicine, Health Care and Philosophy, 1998, 1 (3) : 225 - 233
  • [9] Privacy and the Genetic Community
    Leib-Neri, Marisa A.
    Prince, Anya E. R.
    AMERICAN JOURNAL OF BIOETHICS, 2022, 22 (07): : 70 - 72
  • [10] Genetic privacy and piracy
    不详
    NATURE CELL BIOLOGY, 2009, 11 (05) : 509 - 509