Exploring the role of perceived social support, and spiritual well-being in predicting the family Caregiving burden among the parents of disabled children

被引:0
|
作者
Taher, Mohammad [1 ]
Azizi, Nemat [2 ]
Rohani, Mohammadreza [3 ]
Koukamari, Parisa Hosseini [4 ]
Rashidi, Fatemeh [5 ]
Araban, Marzieh [6 ]
Coetzer-Liversage, Anthony [7 ,8 ]
Karimy, Mahmood [2 ]
机构
[1] Saveh Univ Med Sci, Dept Nursing, Saveh, Iran
[2] Saveh Univ Med Sci, Social Determinants Hlth Res Ctr, Saveh, Iran
[3] Saveh Univ Med Sci, Dept Internal Med, Saveh, Iran
[4] Saveh Univ Med Sci, Dept Publ Hlth, Saveh, Iran
[5] Saveh Univ Med Sci, Student Res Comm, Saveh, Iran
[6] Ahvaz Jundishapur Univ Med Sci, Menopause Andropause Res Ctr, Ahvaz, Iran
[7] ServeMinnesota, Minneapolis, MN USA
[8] Univ Rhode Isl, Dept Psychol, Kingston, RI USA
关键词
Caregiving burden; Perceived social support; Spiritual well-being; PSYCHOMETRIC PROPERTIES; CARE;
D O I
10.1186/s12889-025-21654-2
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background and aim Caregiver burden encompasses the physical, emotional, financial, and social challenges faced by individuals caring for a sick or disabled person. Spiritual well-being and social support have been identified as protective factors against psychological and physical issues, potentially alleviating caregiver burden. This study aims to explore the relationship between spiritual well-being, perceived social support, and caregiver burden among parents of children with disabilities. Method A descriptive-analytical study was conducted with 260 family caregivers, selected through systematic random sampling. Data were collected using a demographic questionnaire, the Novak and Gaug Caregiving Burden Scale, the Paloutzian-Ellison Spiritual Well-being Scale, and the Zimet Social Support Questionnaire. Statistical analysis was performed using IBM SPSS version 22, with significance set at p < 0.05. Results Among the caregivers, 148 (61.4%) reported a high level of caregiving burden, while 81% indicated moderate spiritual well-being and 14.5% reported high spiritual well-being. A significant negative correlation was found between spiritual well-being, social support, and caregiving burden (p < 0.05). Multiple linear regression analysis revealed that spiritual well-being (beta = -0.41) and social support (beta = -0.33) were the most significant predictors of caregiving burden. Additional significant predictors included social activities, underlying health conditions, age, caregiving duration, insurance coverage, and marital status (p < 0.05). Conclusion The high caregiving burden observed in this population, along with the inverse relationship between social support, spiritual well-being, and caregiving burden, underscores the need for strategies to enhance social support and spiritual well-being. These factors may serve as cost-effective, accessible interventions to alleviate caregiving burden.
引用
收藏
页数:9
相关论文
共 50 条
  • [31] The Impact of Perceived Adequacy of Social Support on Caregiving Burden of Family Caregivers
    Lai, Daniel W. L.
    Thomson, Caroline
    FAMILIES IN SOCIETY-THE JOURNAL OF CONTEMPORARY SOCIAL SERVICES, 2011, 92 (01): : 99 - 106
  • [32] Exploring the associations between spiritual well-being, burden, and quality of life in family caregivers of cancer patients
    Spatuzzi, Roberta
    Giulietti, Maria Velia
    Ricciuti, Marcello
    Merico, Fabiana
    Fabbietti, Paolo
    Raucci, Letizia
    Bilancia, Domenico
    Cormio, Claudia
    Vespa, Anna
    PALLIATIVE & SUPPORTIVE CARE, 2019, 17 (03) : 294 - 299
  • [33] Perceived stress and well-being: The role of social support as a protective factor among Peruvian immigrants in spain
    Loayza-Rivas, Jose
    Fernandez-Castro, Jordi
    ANSIEDAD Y ESTRES-ANXIETY AND STRESS, 2020, 26 (2-3): : 67 - 72
  • [34] Comparing hope and psychological well-being in parents of disabled and healthy children
    Reisi, Sajjad
    Bougar, Yusef Mohammadi
    Mehrabi, Nastaran
    Ahmadi, Seyed Mojtaba
    JOURNAL OF SPIRITUALITY IN MENTAL HEALTH, 2023, 25 (04) : 310 - 319
  • [35] Perceived discrimination and subjective well-being among Middle Eastern migrants in Australia: The moderating role of perceived social support
    Hashemi, Neda
    Marzban, Maryam
    Sebar, Bernadette
    Harris, Neil
    INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY, 2021, 67 (02) : 110 - 119
  • [36] Predicting Social Psychological Well-Being Following Trauma: The Role of Postdisaster Social Support
    Kaniasty, Krzysztof
    PSYCHOLOGICAL TRAUMA-THEORY RESEARCH PRACTICE AND POLICY, 2012, 4 (01) : 22 - 33
  • [37] Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder
    Liat Hamama
    Journal of Autism and Developmental Disorders, 2024, 54 : 1468 - 1481
  • [38] Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder
    Hamama, Liat
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2023, 54 (4) : 1468 - 1481
  • [39] SOCIAL WELL-BEING DYNAMICS AMONG THE DISABLED: CONCERNS AND HOPES
    Kozyreva, P. M.
    Smirnov, A., I
    SOTSIOLOGICHESKIE ISSLEDOVANIYA, 2019, (08): : 62 - 74
  • [40] Relationship among post-traumatic growth, spiritual well-being, and perceived social support in Chinese women with gynecological cancer
    Feng, Yue
    Liu, Xingcan
    Zhang, Shixi
    Lin, Tangwei
    Guo, Xiujing
    Chen, Jing
    SCIENTIFIC REPORTS, 2024, 14 (01)