A multi-stakeholder, collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey: Insights from a patient advisory board

被引：0
|
作者：
O'Mahony, Brian [1 ]
Fletcher, Simon [2 ]
Baarslag, Manuel [3 ]
Khair, Kate [2 ]
Breederveld, Daan [4 ]
Jansen, Nathalie [5 ]
Pembroke, Luke [2 ]
Pinachyan, Karen [6 ]
Sivasubramaniyam, Sujan [7 ]
机构：
[1] Irish Haemophilia Soc, Dublin, Ireland
[2] Haemnet, London, England
[3] Radboud Univ Nijmegen, Med Ctr, Nijmegen, Netherlands
[4] Het Med, Rotterdam, Netherlands
[5] CSL Behring, Amsterdam, Netherlands
[6] CSL Behring, Frankfurt, Germany
[7] CSL Behring, London, England
来源：
HAEMOPHILIA | 2024年 / 30卷
关键词：
gene therapy; haemophilia B; teach-back;
D O I：
暂无
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
PP-056(170
引用
收藏
页码：67 / 68
页数：2
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