advance care planning;
palliative care;
patient-centered care;
quality of life;
symptom management;
INTERSTITIAL LUNG-DISEASE;
REHABILITATION;
BREATHLESSNESS;
ADULTS;
COUGH;
D O I:
10.1097/MCP.0000000000001093
中图分类号:
R56 [呼吸系及胸部疾病];
学科分类号:
摘要:
Purpose of reviewUpdated clinical practice guidelines for pulmonary fibrosis recommend early integrated palliative care using a primary palliative approach. Clinicians need to be aware of the various palliative interventions in order to implement guidelines' recommendations. This review provides an update on evidence-based palliative therapies.Recent findingsLiterature review indicates early integration of palliative care in pulmonary fibrosis is feasible and meets patient needs. Key components of a primary palliative approach include comprehensive symptoms and needs screening, systematic symptom management using nonpharmacologic interventions, supplemental oxygen and opioids for dyspnea and cough. Patient-centered communication is essential for successful integration of palliative care. Early, iterative advance care planning in clinic to understand patient goals, values and preferences for current and future care, improves patient care and satisfaction. Prioritizing caregiver inclusion in clinics can address their needs. Collaborating with a multidisciplinary allied team facilitates integration of palliative care and supports patients throughout the disease course. Different models of palliative care delivery exist and can be adapted for local use. The use of artificial intelligence algorithms and tools may improve care and continuity.SummaryClinicians must develop competency in palliative care. Organizational and policy support is essential to enable seamless integration of palliative care throughout the care continuum.
机构:
Royal Marsden NHS Fdn Trust, Royal Marsden & Royal Brompton Palliat Care Serv, London, EnglandUniv Med Ctr Rotterdam, Dept Pulm Med, Erasmus MC, NL-3015 CE Rotterdam, Netherlands
Ross, Joy
Wells, Athol
论文数: 0引用数: 0
h-index: 0
机构:
Royal Brompton & Harefield NHS Fdn Trust, Interstitial Lung Dis Unit, Royal Brompton Hosp, London, EnglandUniv Med Ctr Rotterdam, Dept Pulm Med, Erasmus MC, NL-3015 CE Rotterdam, Netherlands
机构:
Univ Washington, Ctr Interstitial Lung Dis, Seattle, WA 98195 USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, Div Pulm Allergy & Crit Care, Pittsburgh, PA USA
机构:
Univ Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Univ Pittsburgh, Div Pulm Allergy & Crit Care Med, Pittsburgh, PA USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Lindell, Kathleen O.
Liang, Zhan
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15261 USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Liang, Zhan
Hoffman, Leslie A.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15261 USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Hoffman, Leslie A.
Rosenzweig, Margaret Q.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15261 USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Rosenzweig, Margaret Q.
Saul, Melissa I.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Dept Biomed Informat, Sch Med, Pittsburgh, PA 15261 USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Saul, Melissa I.
Pilewski, Joseph M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Div Pulm Allergy & Crit Care Med, Pittsburgh, PA USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Pilewski, Joseph M.
Gibson, Kevin F.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Univ Pittsburgh, Div Pulm Allergy & Crit Care Med, Pittsburgh, PA USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA
Gibson, Kevin F.
Kaminski, Naftali
论文数: 0引用数: 0
h-index: 0
机构:
Yale Univ, Sch Med, New Haven, CT USAUniv Pittsburgh, Dorothy P & Richard P Simmons Ctr Interstitial Lu, UPMC, Pittsburgh, PA USA