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Clinicians'Perspectives on the Telehealth Serious Illness CareProgram for Older Adults With Myeloid Malignancies:Single-ArmPilot Study
被引:0
|作者:
Locastro, Marissa
[1
]
Wang, Ying
[2
]
Yu, Tristan
[3
,5
]
Mortaz-Hedjri, Soroush
[4
]
Mendler, Jason
[4
]
Norton, Sally
[6
]
Bernacki, Rachelle
Carroll, Thomas
[7
]
Klepin, Heidi
[8
]
Wedow, Lucy
[4
]
Goonan, Sean
[4
]
Erdos, Hannah
[4
]
Bagnato, Brenda
[4
]
Liesveld, Jane
[4
]
Huselton, Eric
[4
]
Kluger, Benzi
[9
,10
]
Loh, Kah Poh
[4
]
机构:
[1] Univ Rochester, Sch Med & Dent, Rochester, NY USA
[2] Univ Rochester, Med Ctr, Dept Epidemiol, Rochester, NY USA
[3] Univ Rochester, River Campus, Rochester, NY USA
[4] James P Wilmot Canc Inst, Dept Med, Div Hematol Oncol, 601 Elmwood Ave,Box 704, Rochester, NY 14642 USA
[5] Univ Rochester, Med Ctr, Sch Nursing, Rochester, NY USA
[6] Harvard Med Sch, Dept Palliat Care, Boston, MA USA
[7] Univ Rochester, Med Ctr, Div Gen Med & Palliat Care, Rochester, NY USA
[8] Wake Forest Sch Med, Dept Internal Med, Sect Hematol & Oncol, Winston Salem, NC USA
[9] Univ Rochester, Med Ctr, Div Palliat Care, Rochester, NY USA
[10] Univ Rochester, Med Ctr, Dept Neurol, Rochester, NY USA
关键词:
serious illness conversations;
serious illness conversation;
SIC;
Serious Illness Care Program;
SICP;
hematologic malignancy;
geriatric oncology;
acute myeloid leukemia;
AML;
myelodysplastic syndrome;
MDS;
cancer;
oncology;
oncologist;
oncologists;
metastases;
telemedicine;
telehealth;
tele-medicine;
tele-health;
HEMATOLOGIC MALIGNANCIES;
ADVANCED CANCER;
CARE;
SURVIVAL;
LIFE;
END;
D O I:
10.2196/58503
中图分类号:
R19 [保健组织与事业(卫生事业管理)];
学科分类号:
摘要:
Background: Serious illness conversations may help patients avoid unwanted treatments. We previously piloted the telehealthSerious Illness Care Program (SICP) for older adults with acute myeloid leukemia and myelodysplastic syndrome. Objective: In this study, we aimed to understand the experience of the telehealth SICP from the clinician's perspective. Methods: We studied 10 clinicians who delivered the telehealth SICP to 20 older adults with acute myeloid leukemia ormyelodysplastic syndrome. Quantitative outcomes included confidence and acceptability. Confidence was measured using a22-item survey (range 1-7; a higher score is better). Acceptability was measured using an 11-item survey (5-point Likert scale).Hypothesis testing was performed at alpha=.10 (2-tailed) due to the pilot nature and small sample size. Clinicians participated inaudio-recorded qualitative interviews at the end of the study to discuss their experience. Results: A total of 8 clinicians completed the confidence measure and 7 clinicians completed the acceptability measure. Wefound a statistically significant increase in overall confidence (mean increase of 0.5, SD 0.6; P=.03). The largest increase inconfidence was in helping families with reconciliation and goodbye (mean 1.4, SD 1.5; P=.04). The majority of clinicians agreedthat the format was simple (6/7, 86%) and easy to use (6/7, 86%). Clinicians felt that the telehealth SICP was effective inunderstanding their patients'values about end-of-life care (7/7, 100%). A total of three qualitative themes emerged: (1) thetelehealth SICP deepened relationships and renewed trust; (2) each telehealth SICP visit felt unique and personal in a positiveway; and (3) uninterrupted, unrushed time optimized the visit experience. Conclusions: The telehealth SICP increased confidence in having serious illness conversations while deepening patient-clinicianrelationships
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