Health professionals' and caregivers' perspectives on improving paramedics' provision of palliative care in Australian communities: a qualitative study
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作者:
Juhrmann, Madeleine
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机构:
Univ Sydney Northern Clin Sch, St Leonards, NSW, Australia
HammondCare, Sydney, NSW, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Juhrmann, Madeleine
[1
,2
]
Butow, Phyllis
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机构:
Univ Sydney Sch Psychol, Sch Psychol, Sydney, NSW, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Butow, Phyllis
[3
]
Platts, Cara
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机构:
St Vincents Hosp Melbourne Pty Ltd, Fitzroy, Vic, Australia
Univ Melbourne, Melbourne Med Sch, Melbourne, Vic, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Platts, Cara
[4
,5
]
Boughey, Mark
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机构:
Univ Melbourne, Melbourne Med Sch, Melbourne, Vic, Australia
St Vincents Hosp Melbourne Ltd, Palliat Med, Fitzroy, Vic, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Boughey, Mark
[5
,6
]
Simpson, Paul
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机构:
Western Sydney Univ, Sch Hlth Sci, Penrith, NSW, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Simpson, Paul
[7
]
Clayton, Josephine M.
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机构:
Univ Sydney Northern Clin Sch, St Leonards, NSW, Australia
HammondCare, Sydney, NSW, AustraliaUniv Sydney Northern Clin Sch, St Leonards, NSW, Australia
Clayton, Josephine M.
[1
,2
]
机构:
[1] Univ Sydney Northern Clin Sch, St Leonards, NSW, Australia
[2] HammondCare, Sydney, NSW, Australia
[3] Univ Sydney Sch Psychol, Sch Psychol, Sydney, NSW, Australia
[4] St Vincents Hosp Melbourne Pty Ltd, Fitzroy, Vic, Australia
[5] Univ Melbourne, Melbourne Med Sch, Melbourne, Vic, Australia
[6] St Vincents Hosp Melbourne Ltd, Palliat Med, Fitzroy, Vic, Australia
[7] Western Sydney Univ, Sch Hlth Sci, Penrith, NSW, Australia
palliative care;
emergency departments;
health workforce;
D O I:
10.1136/bmjopen-2024-086557
中图分类号:
R5 [内科学];
学科分类号:
1002 ;
100201 ;
摘要:
Objectives Paramedics have the potential to make a substantial contribution to community-based palliative care provision. However, they are hindered by a lack of policy and institutional support, as well as targeted education and training. This study aimed to elicit paramedics', palliative care doctors' and nurses', general practitioners', residential aged care nurses' and bereaved families and carers' attitudes and perspectives on how palliative paramedicine can be improved to better suit the needs of community-based patients, their families and carers, and the clinicians involved in delivering the care.Design In this qualitative study underpinned by a social constructivist epistemology, semistructured interviews were conducted.Setting and participants 50 participants with palliative paramedicine experience, from all jurisdictions of Australia. Participants were interviewed between November 2021 and April 2022.Results All participants suggested paramedics play an important adjunct role in the provision of palliative and end-of-life care in home-based settings. Three levels of opportunities for improvement were identified: macrolevel (policy and frameworks; funding and education; accessing medical records and a widening scope); mesolevel (service-level training; interprofessional understanding and communities of practice and community expectations) and microlevel (palliative care subspecialty; debriefing and self-care and partnering with families).Conclusion To enhance paramedic capacity to provide palliative care support, improvements targeting systems, services, communities and individuals should be made. This calls for stronger inclusion of paramedicine in interdisciplinary palliative care and greater investment in both the generalist and specialist palliative paramedicine workforce.
机构:
Haute Autorite Sante, Paris, FranceMcGill Univ, Jewish Gen Hosp, Lady Davis Inst, Div Geriatr,Dept Family Med, Montreal, PQ H3T 1E2, Canada
Ghadi, Veronique
Lapointe, Liette
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机构:
McGill Univ, Desautels Fac Management, Montreal, PQ H3T 1E2, CanadaMcGill Univ, Jewish Gen Hosp, Lady Davis Inst, Div Geriatr,Dept Family Med, Montreal, PQ H3T 1E2, Canada
Lapointe, Liette
Routelous, Christelle
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机构:
Ecole Hautes Etud Sante Publ, Inst Management, Rennes, FranceMcGill Univ, Jewish Gen Hosp, Lady Davis Inst, Div Geriatr,Dept Family Med, Montreal, PQ H3T 1E2, Canada
Routelous, Christelle
Aegerter, Philippe
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h-index: 0
机构:
Univ Versailles St Quentin, Hop Ambroise Pare, AP HP, Dept Sante Publ, Boulogne, FranceMcGill Univ, Jewish Gen Hosp, Lady Davis Inst, Div Geriatr,Dept Family Med, Montreal, PQ H3T 1E2, Canada
Aegerter, Philippe
Guirimand, Frederic
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h-index: 0
机构:
Maison Med Jeanne Garnier, Pole Rech, Paris, FranceMcGill Univ, Jewish Gen Hosp, Lady Davis Inst, Div Geriatr,Dept Family Med, Montreal, PQ H3T 1E2, Canada
机构:
Tampere Univ, Fac Med & Hlth Technol, Tampere, Finland
Tampere Univ Hosp, Dept Oncol, Palliat Care Ctr, Tampere, FinlandKajaani Univ Appl Sci, Ketunpolku 4, Kajaani 87101, Finland
Lehto, Juho T.
Kaakinen, Pirjo
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机构:
Univ Oulu, Res Unit Nursing Sci & Hlth Management, Oulu, FinlandKajaani Univ Appl Sci, Ketunpolku 4, Kajaani 87101, Finland
机构:
Karolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Holm, Maja
Carlander, Ida
论文数: 0引用数: 0
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机构:
Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden
Karolinska Inst, Dept Learning Informat Management & Eth, Stockholm, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Carlander, Ida
Furst, Carl-Johan
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机构:
Lund Univ, Dept Clin Sci, Lund, Sweden
Lund Univ, Inst Palliat Care, Lund, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Furst, Carl-Johan
Wengstrom, Yvonne
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机构:
Karolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Univ Orebro, Sch Hlth & Med Sci, SE-70182 Orebro, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Wengstrom, Yvonne
Arestedt, Kristofer
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机构:
Linkoping Univ, Dept Med Hlth Sci, Linkoping, Sweden
Linnaeus Univ, Ctr Collaborat Palliat Care, Kalmar, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Arestedt, Kristofer
Ohlen, Joakim
论文数: 0引用数: 0
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机构:
Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden
Univ Gothenburg, Ctr Person Ctr Care, Gothenburg, Sweden
Univ Gothenburg, Sahlgrenska Acad, Inst Hlth & Care Sci, Gothenburg, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Ohlen, Joakim
Henriksson, Anette
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机构:
Karolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
Ersta Skondal Univ Coll, Dept Hlth Care Sci, Stockholm, Sweden
Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden
Dalen Hosp, Palliat Care Unit, Capio Geriatr, Stockholm, SwedenKarolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Pinto, Cathryn
Bristowe, Katherine
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机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Bristowe, Katherine
Witt, Jana
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机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Witt, Jana
Davies, Joanna M.
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机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Davies, Joanna M.
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de Wolf-Linder, Susanne
Dawkins, Marsha
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Dawkins, Marsha
Guo, Ping
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Guo, Ping
Higginson, Irene J.
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Higginson, Irene J.
Daveson, Barbara
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Daveson, Barbara
Murtagh, Fliss E. M.
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
Univ Hull, Wolfson Palliat Care Res Ctr, Hull York Med Sch, Kingston Upon Hull, N Humberside, EnglandKings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London, England
机构:
UCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, EnglandUCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, England
Low, Joe
Pattenden, Jill
论文数: 0引用数: 0
h-index: 0
机构:
Univ York, Dept Hlth Sci, York YO10 5DD, N Yorkshire, EnglandUCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, England
Pattenden, Jill
Candy, Bridget
论文数: 0引用数: 0
h-index: 0
机构:
UCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, EnglandUCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, England
Candy, Bridget
Beattie, James M.
论文数: 0引用数: 0
h-index: 0
机构:
Heart England Natl Hlth Serv Fdn Trust, Dept Cardiol, Heartlands Hosp, Birmingham, W Midlands, EnglandUCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, England
Beattie, James M.
Jones, Louise
论文数: 0引用数: 0
h-index: 0
机构:
UCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, EnglandUCL, Marie Curie Palliat Care Res Unit, Dept Mental Hlth Sci, London NW3 2PF, England