Nomenclature in palliative care and renal support: Not just at the end-of-life

被引:0
|
作者
Nitola-Mendoza, Lina [1 ]
Sanchez-Cardenas, Miguel [2 ]
Rodriguez-Chitiva, Nestor [3 ,4 ]
Gutierrez, Jose Maria Mora [5 ,6 ]
Rodriguez-Pena, Rosely [3 ,4 ]
Romero-Gonzalez, Gregorio [3 ,4 ,7 ]
Perez, Monserrat Bleda [1 ]
Casbas, Paula Cuenca [1 ]
Berna, Agnes Calsina [1 ,8 ]
Pardo, Margarita alvaro [1 ]
Casas, Virginia Granados [1 ]
Ballart, Paula Garrido [1 ]
Groh, Patricia Beroiz [9 ]
Bover, Jordi [3 ,4 ]
Basseda, Ramon Miralles [9 ]
Leiva-Santos, Juan Pablo [10 ]
Alonso-Babarro, Alberto [11 ]
Julia-Torras, Joaquim [1 ,12 ]
机构
[1] Inst Catala Oncol, Serv Cuidados Paliat, Barcelona, Spain
[2] Univ Bosque, Fac Enfermeria, Bogota, Colombia
[3] Hosp Badalona Germans Trias & Pujol, Serv Nefrol, Badalona, Barcelona, Spain
[4] Inst Invest Germans Trias & Pujol, Grp REMAR IGTP, Campus Can Ruti, Badalona, Barcelona, Spain
[5] Clin Univ Navarra, Dept Nefrol, Pamplona, Spain
[6] Inst Invest Sanitaria Navarra, IdiSNA, Pamplona, Spain
[7] Int Renal Res Inst Vicenza, Vicenza, Italy
[8] Univ Cent Catalunya, Univ Vic, Fac Med, Catedra Cuidados Paliat, Vic, Barcelona, Spain
[9] Hosp Badalona Germans Trias & Pujol, Serv Geriatria, Badalona, Barcelona, Spain
[10] Hosp Manacor, Equipo Soporte Hosp Atenc Paliat, Manacor, Illes Balears, Spain
[11] Hosp Univ La Paz, Serv Madrileno Salud, Unidad Cuidados Paliat, Madrid, Spain
[12] UIC, Univ Int Catalunya, Fac Ciencias Salud, Barcelona, Spain
来源
NEFROLOGIA | 2024年 / 44卷 / 04期
关键词
Nomenclature; Nephrology; Chronic kidney disease; Palliative care; Supportive care; DIALYSIS; DISEASE; SYSTEM; NEED; TOOL; ILL;
D O I
10.1016/j.nefro.2023.05.006
中图分类号
R5 [内科学]; R69 [泌尿科学(泌尿生殖系疾病)];
学科分类号
1002 ; 100201 ;
摘要
The multidimensional view of the disease is fundamental in the care of complex diseases such as chronic kidney disease (CKD). It is appropriate to define and unify concepts that allow the different professionals involved in care to provide multidisciplinary care tailored to the needs of each individual. Given the increasing incidence of CKD worldwide and the fact that the disease may progress at different rates, there is a need to establish personalized, comprehensive approaches for each patient and their families at an earlier stage. This approach goes beyond the simple control of uremic symptoms or congestion and consists of addressing not only symptomatic but also functional, social and coping problems at an early stage, facilitating decision making both in the CKD and in acute settings, potentially irreversible situations or interventions that do not improve life expectancy. To ensure excellence in care, it is important to assess indicators of palliative care and renal support, such as the presence of advance and shared care planning, the inclusion of psycho- social, ethical, spiritual and bereavement care. This enables the provision of comprehensive, humanized, and high-quality care for patients and their families. Palliative and renal care is not just about patients in the last days of life. Defining, unifying, and evaluating the concepts will allow them to be applied in a timely manner at each specific moment of the CKD trajectory. (c) 2023 Sociedad Espa nola ola de Nefrolog & imath;<acute accent>a. Published by Elsevier Espa na, a, S.L.U. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/ by-nc-nd/4.0/).
引用
收藏
页码:475 / 485
页数:11
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