Pediatric to adult transition care in neurogastroenterology and motility: A position paper from the American Neurogastroenterology and Motility Society and European Society of Neurogastroenterology and Motility

被引：3

作者：

Butt, Mohsin F. ^{[1
,2
]}

Groen, Jip ^{[3
]}

Jonker, Charlotte A. L. ^{[3
]}

Burton-Murray, Helen ^{[4
]}

Carrington, Emma V. ^{[5
]}

Chang, Lin ^{[6
,7
]}

Di Lorenzo, Carlo ^{[8
]}

Ellis, Jacob ^{[9
]}

Escher, Johanna C. ^{[10
]}

Gorter, Ramon R. ^{[11
]}

Jewell, Sorcha ^{[12
]}

Karrento, Katja ^{[13
]}

Koster, Emma C. ^{[14
]}

Nurko, Samuel ^{[15
]}

Rosen, Rachel ^{[15
]}

van Tilburg, Miranda A. L. ^{[16
,17
,18
,19
]}

Zarate-Lopez, Natalia ^{[20
,21
]}

Corsetti, Maura ^{[1
]}

Benninga, Marc A. ^{[3
]}

机构：

[1] Univ Nottingham, Nottingham Digest Dis Ctr, Sch Med, Translat Med Sci, Nottingham, England

[2] Mayo Clin, Div Gastroenterol & Hepatol, Rochester, MN 55905 USA

[3] Locat Univ Amsterdam, Emma Childrens Hosp, Amsterdam UMC, Pediat Gastroenterol, Amsterdam, Netherlands

[4] Harvard Med Sch, Dept Psychiat, Boston, MA USA

[5] Imperial Coll NHS Trust, Dept Surg & Canc, London, England

[6] Univ Calif Los Angeles, G Oppenheimer Ctr Neurobiol Stress, Los Angeles, CA USA

[7] Univ Calif Los Angeles, David Geffen Sch Med, Vatche & Tamar Manoukian Div Digest Dis, Los Angeles, CA USA

[8] Nationwide Childrens Hosp, Dept Pediat, Div Gastroenterol Hepatol & Nutr, Columbus, OH USA

[9] Univ Coll London Hosp NHS Fdn Trust, Dept Child & Adolescent Psychol Med, London, England

[10] Erasmus MC, Sophia Childrens Hosp, Dept Pediat Gastroenterol, Rotterdam, Netherlands

[11] Locat Univ Amsterdam, Emma Childrens Hosp, Amsterdam UMC, Dept Pediat Surg, Amsterdam, Netherlands

[12] Patient Representat, London, England

[13] Med Coll Wisconsin, Dept Pediat, Div Pediat Gastroenterol Hepatol & Nutr, Milwaukee, WI USA

[14] Erasmus MC, Dept Internal Med, Div Dietet, Rotterdam, Netherlands

[15] Childrens Hosp Boston, Ctr Motil & Funct Gastrointestinal Disorders, Div Gastroenterol, Boston, MA USA

[16] Cape Fear Valley Hlth, Grad Med Educ, Fayetteville, NC USA

[17] Marshall Univ, Joan C Edwards Sch Med, Huntington, WV USA

[18] Univ North Carolina, Dept Gastroenterol & Hepatol, Chapel Hill, NC USA

[19] Univ Washington, Sch Social Work, Seattle, WA USA

[20] Univ Coll London Hosp NHS Fdn Trust, Dept Gastroenterol & Gastrointestinal Physiol, London, England

[21] UCL, Div Surg & Intervent Sci, London, England

来源：

NEUROGASTROENTEROLOGY AND MOTILITY | 2024年 / 36卷 / 10期

关键词：

disorder of gut-brain interaction; neurogastroenterology; pediatrics; transition clinic; FUNCTIONAL ABDOMINAL-PAIN; INFLAMMATORY-BOWEL-DISEASE; COGNITIVE-BEHAVIORAL THERAPY; QUALITY-OF-LIFE; GASTROINTESTINAL DISORDERS; CHILDREN; ADOLESCENTS; GASTROENTEROLOGY; CHILDHOOD; PATIENT;

D O I：

10.1111/nmo.14869

中图分类号：

R57 [消化系及腹部疾病];

学科分类号：

摘要：

Transition services-programs that support adolescents and young adults (AYAs) as they move from a child-centered to a more autonomous, adult-orientated healthcare system-have been associated with improved short- and long-term healthcare outcomes. Unfortunately, there is a paucity of evidence exploring transition services within the neurogastroenterology and motility (NGM) field. The overall aim of this article, endorsed by the American Neurogastroenterology and Motility Society and European Society of Neurogastroenterology and Motility, is to promote a discussion about the role of transition services for patients with NGM disorders. The AYAs addressed herein are those who have: (a) a ROME positive disorder of gut-brain interaction (DGBI), (b) a primary or secondary motility disorder (including those with motility disorders that have been surgically managed), or (c) an artificial feeding requirement (parenteral or enteral tube feeding) to manage malnutrition secondary to categories (a) or (b). The issues explored in this position paper include the specific physical and psychological healthcare needs of patients with NGM disorders; key healthcare professionals who should form part of a secondary care NGM transition service; the triadic relationship between healthcare professionals, caregivers, and patients; approaches to selecting patients who may benefit most from transition care; methods to assess transition readiness; and strategies with which to facilitate transfer of care between healthcare professionals. Key areas for future research are also addressed, including the construction of NGM-specific transition readiness questionnaires, tools to assess post-transfer healthcare outcomes, and educational programs to train healthcare professionals about transition care in NGM. A position paper, endorsed by the American Neurogastroenterology and Motility Society and European Society of Neurogastroenterology and Motility, focusing on transition care for adolescents and young adults transitioning from pediatric to adult healthcare settings.image

引用

页数：12

共 50 条

[1] Prokinetics-safety and efficacy: The European Society of Neurogastroenterology and Motility/The American Neurogastroenterology and Motility Society expert review
Bor, Serhat
Kalkan, Ismail H.
Savarino, Edoardo
Rao, Satish
Tack, Jan
Pasricha, Jay
Cangemi, David
Schol, Jolien
Karunaratne, Tennekon
Ghisa, Matteo
Ahuja, Nitin K.
Lacy, Brian
NEUROGASTROENTEROLOGY AND MOTILITY, 2024, 36 (05):
[2] Development of Entrustable Professional Activities and Standards in Training in Pediatric Neurogastroenterology and Motility: North American Society for Pediatric Gastroenterology, Hepatology and Nutrition and American Neurogastroenterology and Motility Society Position Paper
Khlevner, Julie
Rosen, Rachel
Ambartsumyan, Lusine
Lusman, Sarah Shrager
Rosen, John M.
Yacob, Desale
Mousa, Hayat
Nurko, Samuel
Di Lorenzo, Carlo
Boruta, Mary
Ratcliffe, Elyanne M.
Feinstein, Laurence
Snyder, Julie
Wood, Richard J.
Graham, Kahleb
Saps, Miguel
Gyawali, C. Prakash
Rodriguez, Leonel
Belkind-Gerson, Jaime
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2021, 72 (01): : 168 - 180
[3] Neurogastroenterology and Motility
Fried, M.
GASTROENTEROLOGE, 2008, 3 (06): : 451 - 452
[4] Pediatric Neurogastroenterology and Motility Services in North America: Neurogastroenterology and Motility Survey Report
Patel, Dhiren
Safder, Skaista S.
El-Chammas, Khalil
Kapavarapu, Prasanna
Wheeler, Justin
Mostamand, Shikib
Khlevner, Julie
Darbar, Anil
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2022, 74 (05): : 593 - 598
[5] Critical appraisal of the SIBO hypothesis and breath testing: A clinical practice update endorsed by the European society of neurogastroenterology and motility (ESNM) and the American neurogastroenterology and motility society (ANMS)
Kashyap, Purna
Moayyedi, Paul
Quigley, Eamonn M. M.
Simren, Magnus
Vanner, Stephen
NEUROGASTROENTEROLOGY AND MOTILITY, 2024, 36 (06):
[6] European society of neurogastroenterology and motility guidelines on functional constipation in adults
Serra, Jordi
Pohl, Daniel
Azpiroz, Fernando
Chiarioni, Giuseppe
Ducrotte, Philippe
Gourcerol, Guillaume
Hungin, A. Pali S.
Layer, Peter
Mendive, Juan-Manuel
Pfeifer, Johann
Rogler, Gerhard
Scott, S. Mark
Simren, Magnus
Whorwell, Peter
Aguilar, Ariadna
Caballero, Noemi
Schindler, Valeria
Popa, Stefan-Lucian
Malagelada, Carolina
Andresen, Viola
Waha, James E.
Grossi, Ugo
Taylor, Stuart A.
Hassan, S. S.
NEUROGASTROENTEROLOGY AND MOTILITY, 2020, 32 (02):
[7] NEUROGASTROENTEROLOGY IN 2011 Emerging concepts in neurogastroenterology and motility
Sharkey, Keith A.
Mawe, Gary M.
NATURE REVIEWS GASTROENTEROLOGY & HEPATOLOGY, 2012, 9 (02) : 74 - 76
[8] Workshop for Neurogastroenterology and Motility
Wietek, B
Enck, P
ZEITSCHRIFT FUR GASTROENTEROLOGIE, 2001, 39 (03): : 239 - 241
[9] Summary of the Annual Meeting of the German Society for Neurogastroenterology and Motility
Pehl, C.
Andresen, V.
ZEITSCHRIFT FUR GASTROENTEROLOGIE, 2009, 47 (09): : 846 - 849
[10] Neurogastroenterology and Motility Section
Rao, Satish S. C.
Wiley, John
CELLULAR AND MOLECULAR GASTROENTEROLOGY AND HEPATOLOGY, 2017, 3 (03): : 293 - 294

← 1 2 3 4 5 →