What Makes a Better Life for People Facing Dementia? Toward Dementia-Friendly Health and Social Policy, Medical Care, and Community Support in the United States

被引:2
|
作者
Gaster, Barak
Largent, Emily A.
机构
关键词
dementia care; health policy; health care delivery; advance care planning; palliative care; COMMUNICATION; STIGMA;
D O I
10.1002/hast.1554
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Taking steps to build a more dementia-friendly society is essential for addressing the needs of people experiencing dementia. Initiatives that improve the quality of life for those living with dementia are needed to lessen controllable factors that can negatively influence how people envision a future trajectory of dementia for themselves. Programs that provide better funding and better coordination for care support would lessen caregiver burden and make it more possible to imagine more people being able to live what they might consider a "good life" with dementia. Specific proposals, such as payment for dementia care managers and new systems to support high-quality, symptom-based palliative care beyond the hospice benefit of only six months, would improve and reframe how many people in the United States experience a dementia illness. Such changes should be incorporated into discussions about improving and respecting preferences in the later stages of dementia.
引用
收藏
页码:S40 / S47
页数:8
相关论文
共 4 条
  • [1] When People Facing Dementia Choose to Hasten Death: The Landscape of Current Ethical, Legal, Medical, and Social Considerations in the United States
    Largent, Emily A.
    Lowers, Jane
    Pope, Thaddeus Mason
    Quill, Timothy E.
    Wynia, Matthew K.
    [J]. HASTINGS CENTER REPORT, 2024, 54 : S11 - S21
  • [2] What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions
    Reilly, Siobhan T.
    Harding, Andrew J. E.
    Morbey, Hazel
    Ahmed, Faraz
    Williamson, Paula R.
    Swarbrick, Caroline
    Leroi, Iracema
    Davies, Linda
    Reeves, David
    Holland, Fiona
    Hann, Mark
    Keady, John
    [J]. AGE AND AGEING, 2020, 49 (04) : 664 - 671
  • [3] What is important to people living with dementia?: the "long-list' of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions
    Harding, Andrew J. E.
    Morbey, Hazel
    Ahmed, Faraz
    Opdebeeck, Carol
    Lasrado, Reena
    Williamson, Paula R.
    Swarbrick, Caroline
    Leroi, Iracema
    Challis, David
    Hellstrom, Ingrid
    Burns, Alistair
    Keady, John
    Reilly, Siobhan T.
    [J]. BMC GERIATRICS, 2019, 19 (1)
  • [4] What is important to people living with dementia?: the ‘long-list’ of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions
    Andrew J. E. Harding
    Hazel Morbey
    Faraz Ahmed
    Carol Opdebeeck
    Reena Lasrado
    Paula R. Williamson
    Caroline Swarbrick
    Iracema Leroi
    David Challis
    Ingrid Hellstrom
    Alistair Burns
    John Keady
    Siobhan T. Reilly
    [J]. BMC Geriatrics, 19