Self-reflections, lessons learned and suggestions for data quality assurance from a retrospective data analysis from the Canadian Bleeding Disorders Registry

被引：0
|
作者：
Iorio, Alfonso [1 ]
Keepanasseril, Arun [1 ]
Ibrahim, Quazi [2 ]
Iserman, Emma [1 ]
Blaser, Heiko [3 ]
机构：
[1] McMaster Univ, Hamilton, ON, Canada
[2] McMaster Univ, Dept Hlth Res Methods Evidence & Impact HEI, Hamilton, ON, Canada
[3] Takeda Canada Inc, Toronto, ON, Canada
来源：
HAEMOPHILIA | 2024年 / 30卷
关键词：
Canada; data quality; registry;
D O I：
暂无
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
PP-026 (16
引用
收藏
页码：38 / 39
页数：2
相关论文
共 50 条
  • [1] Can a Registry Match the Data Quality of a Clinical Trial? Lessons Learned from INTERMACS
    Naftel, D. C.
    Kirklin, J. K.
    Myers, S. L.
    Clark, M. L.
    Hollifield, K. A.
    Collum, S. C.
    Miller, M. A.
    [J]. JOURNAL OF HEART AND LUNG TRANSPLANTATION, 2012, 31 (04): : S261 - S261
  • [2] Data and demographics from the Australian Bleeding Disorders Registry (ABDR)
    Rowell, John
    Caris, Sharon
    Stewart, Kim
    Stone, Michael
    Hyland, Paul
    Barnes, Chris
    [J]. HAEMOPHILIA, 2014, 20 : 34 - 34
  • [3] Ocean Data Integration: Successes and Lessons Learned from the Bleeding Edge
    Chaouchi, M.
    Snowden, D.
    de La Beaujardiere, J.
    Crout, R.
    Bassett, R.
    [J]. 2012 OCEANS, 2012,
  • [4] Data quality assurance and control in cognitive research: Lessons learned from the PREDICT-HD study
    Westervelt, Holly James
    Bernier, Rachel A.
    Faust, Melanie
    Gover, Mary
    Bockholt, H. Jeremy
    Zschiegner, Roland
    Long, Jeffrey D.
    Paulsen, Jane S.
    [J]. INTERNATIONAL JOURNAL OF METHODS IN PSYCHIATRIC RESEARCH, 2017, 26 (03)
  • [5] What lessons can be learned for cancer registration quality assurance from data users? Skin cancer as an example
    Maudsley, G
    Williams, E
    [J]. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 1999, 28 (05) : 809 - 815
  • [6] Quality of Data Measurements in the Big Data Era: Lessons Learned from MIDAS Project
    Epelde, Gorka
    Beristain, Andoni
    Alvarez, Roberto
    Arrue, Monica
    Ezkerra, Iker
    Belar, Oihana
    Bilbao, Roberto
    Nikolic, Gorana
    Shi, Xi
    De Moor, Bart
    Mulvenna, Maurice
    [J]. IEEE INSTRUMENTATION & MEASUREMENT MAGAZINE, 2020, 23 (07) : 18 - 24
  • [7] Quality of data measurements in the big data era: Lessons learned from MIDAS project
    Epelde, Gorka
    Beristain, Andoni
    Alvarez, Roberto
    Arrue, Monica
    Ezkerra, Iker
    Belar, Oihana
    Bilbao, Roberto
    Nikolic, Gorana
    Shi, Xi
    De Moor, Bart
    Mulvenna, Maurice
    [J]. IEEE Instrumentation and Measurement Magazine, 2020, 23 (07): : 18 - 24
  • [8] Lessons Learned From the Analysis of Soldier Collected Blast Data
    Fain, W. Bradley
    Phelps, Shean
    Medda, Alessio
    [J]. MILITARY MEDICINE, 2015, 180 (03) : 201 - 206
  • [9] Lessons Learned from Analysis of DNA Methylation Array Data
    Fridley, Brooke L.
    Armasu, Sebastian M.
    Larson, Melissa C.
    Cicek, Mine S.
    Vierkant, Robert A.
    Shridhar, Viji
    Olson, Janet E.
    Cunningham, Julie M.
    Kalli, Kimberly R.
    Goode, Ellen L.
    [J]. GENETIC EPIDEMIOLOGY, 2012, 36 (07) : 724 - 724
  • [10] Biostatistics pitfalls: Lessons learned from analysis of medical data
    Yin, Guosheng
    Zhang, Chenyang
    Yang, Zhao
    [J]. CONTEMPORARY CLINICAL TRIALS, 2019, 87
12345