Shaping research for people living with co-existing mental and physical health conditions: A research priority setting initiative from the United Kingdom
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作者:
Taylor, Olivia
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Univ York, Dept Hlth Sci, York, EnglandUniv York, Dept Hlth Sci, York, England
Taylor, Olivia
[1
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Newbronner, Elizabeth
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Cooke, Helen
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Publ Contributor, Leeds, EnglandUniv York, Dept Hlth Sci, York, England
Cooke, Helen
[2
]
Walker, Lauren
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City Univ London, Sch Hlth & Psychol Sci, London, EnglandUniv York, Dept Hlth Sci, York, England
Walker, Lauren
[3
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Wadman, Ruth
[1
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[1] Univ York, Dept Hlth Sci, York, England
[2] Publ Contributor, Leeds, England
[3] City Univ London, Sch Hlth & Psychol Sci, London, England
mental illness;
multimorbidity;
physical health;
public involvement;
research priorities;
MAJOR DEPRESSIVE DISORDER;
BIPOLAR DISORDER;
SCHIZOPHRENIA;
PSYCHIATRY;
MORTALITY;
DIET;
D O I:
10.1111/hex.14044
中图分类号:
R19 [保健组织与事业(卫生事业管理)];
学科分类号:
摘要:
IntroductionThose with severe and enduring mental ill health are at greater risk of long-term physical health conditions and have a reduced life expectancy as a result. Multiple factors compound this health inequality, and the need for setting research priorities in this area is highlighted with physical and mental healthcare services being separate, and limited multimorbidity research.MethodsThe aim of this exercise was to work in partnership with healthcare professionals and carers, family, friends and individuals with lived experience of both mental and physical health conditions, to set research priorities to help people with mental health conditions to look after their physical health. The exercise was guided by the James Lind Alliance approach. For this, a steering group was set up, two surveys were completed and a final priority workshop was conducted.ResultsThis priority setting exercise guided by people's needs and lived experience has produced a set of well-defined research topics. Initially, 555 research questions were suggested in the first survey, which were refined to 54 questions for the second survey. A priority setting workshop was then conducted to get the final 10 priorities.ConclusionsTaking these topics forward to improve services and treatment for both mental and physical ill health may in turn improve physical health and lessen the reduced life expectancy of those living with mental ill health.Patient or Public ContributionThis work was completed in collaboration with people who have lived experience of mental ill health and physical health conditions, as well as carers, family and friends. Their contribution has been significant for this work from piloting surveys, amending language used and educating the researchers and contributing to this paper. The initial work was completed with a steering group and continued with surveys and workshops.
机构:
Great Ormond St Hosp Sick Children, Dept Dietet, London, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
O'Connor, Graeme
Marino, Luise V.
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Univ Southampton, Univ Hosp NHS Fdn Trust Southampton, Southampton Childrens Hosp, Paediat Intens Care Unit, Southampton, England
Univ Southampton, Fac Hlth Sci, Southampton, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Marino, Luise V.
Tume, Lyvonne N.
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Univ Salford, Sch Hlth & Soc, Manchester, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Tume, Lyvonne N.
Stewart, Alexandra
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Alder Hey Childrens Hosp, Paediat Intens Care Unit, Liverpool, England
Great Ormond St Hosp Sick Children, Dept Speech & Language Therapy, London, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Stewart, Alexandra
Gates, Simon
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Nottingham Univ Hosp NHS Trust, Dept Physiotherapy, Nottingham, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Gates, Simon
Lanigan, Julie
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Univ Coll London Great Ormond St Inst Child Hlth, Populat Policy & Practice Res & Teaching Dept, London, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Lanigan, Julie
Bangalore, Harish
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Great Ormond St Hosp Sick Children, Dept Paediat Crit Care Med, London, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
Bangalore, Harish
Kinsella, Suzannah
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Natl Inst Hlth Res, Evaluat Trials & Studies Coordinating Ctr, James Lind Alliance, Southampton, EnglandGreat Ormond St Hosp Sick Children, Dept Dietet, London, England
机构:
New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
New York State Dept Hlth, Corning Tower,Room 760, Albany, NY 12237 USA
SUNY Albany, Dept Epidemiol & Biostat, Sch Publ Hlth, 1 Univ Pl, Rensselaer, NY 12144 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
O'Grady, Thomas
Inman, Nina
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
Inman, Nina
Younger, Alitasha
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
Younger, Alitasha
Huang, Bishan
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
SUNY Albany, Dept Epidemiol & Biostat, Sch Publ Hlth, 1 Univ Pl, Rensselaer, NY 12144 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
Huang, Bishan
Bouton, Taylor Olivia
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
Bouton, Taylor Olivia
Kim, Heeun
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
Kim, Heeun
DeLorenzo, Emily
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New York State Dept Hlth, AIDS Inst, Albany, NY 12203 USANew York State Dept Hlth, AIDS Inst, Albany, NY 12203 USA
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Natl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA
Natl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, 6001 Execut Blvd,Room 6113, Rockville, MD 20892 USANatl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA
Lewis Johnson, Tamara
Rowland, Laura
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Natl Inst Mental Hlth, Neurosci Mental Disorders & Aging Program, Div Translat Res, NIH, Rockville, MD USANatl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA
Rowland, Laura
Ashraf, Mahela
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Michigan Med, Dept Psychiat, Ann Arbor, MI USANatl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA
Ashraf, Mahela
Clark, Crystal
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Univ Toronto, Womens Coll Hosp, Dept Psychiat, Toronto, ON, CanadaNatl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA
Clark, Crystal
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Dotson, Vonetta
Livinski, Alicia
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Off Res Serv, Natl Inst Hlth Lib, NIH, Off Director, Bethesda, MD USANatl Inst Mental Hlth, Womens Mental Hlth Res Program, Off Dispar Res & Workforce Divers, NIH, Rockville, MD USA