Palliative care delivery in India during COVID-19 pandemic: role of faith-based hospitals - a qualitative study

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作者
Sundararaj, Jenifer Jeba [1 ]
Singh, Ashita [2 ,3 ,4 ]
Priscilla, Ruby Angeline [5 ]
John, Priya [6 ]
Duomai, Savita [7 ]
Munday, Daniel [8 ]
Powys, Ruth [9 ]
Boyd, Kirsty J. [8 ]
Grant, Liz [10 ]
Murray, Scott A. [8 ]
机构
[1] Christian Med Coll & Hosp Vellore, Palliat Med, Vellore, Tamil Nadu, India
[2] Chinchpada Christian Hosp, Navapur, Maharashtra, India
[3] Chinchpada Christian Hosp, Chinchpada, Maharashtra, India
[4] Emmanuel Hosp Assoc Palliat Care Serv, Chinchpada, India
[5] Christian Med Coll & Hosp Vellore, Community Med, Vellore, Tamil Nadu, India
[6] Christian Med Assoc India, Delhi, India
[7] Khyouchi Hlth Care Ctr, Community Med, Manipur, India
[8] Univ Edinburgh, Usher Inst Populat Hlth Sci & Informat, Edinburgh, Scotland
[9] Green Pastures Hosp, Palliat Care, Pokhara, Nepal
[10] Univ Edinburgh, Global Hlth Acad, Edinburgh, Scotland
关键词
COVID-19; Home Care; Hospital care; Psychological care; Chronic conditions;
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R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objectives The COVID-19 pandemic challenged palliative care (PC) services globally. We studied the ways healthcare professionals (HCPs) working in faith-based hospitals (FBHs) experienced and adapted care through the pandemic, and how this impacted patients with PC needs.Methods In-depth interviews were conducted with HCPs from FBHs serving rural and urban population across India. Thematic analysis was conducted.Results A total of 10 in-depth interviews were conducted during the COVID-19 pandemic, first wave (4), second wave (4) and between them (2). HCPs described fear and stigma in the community early in the pandemic. Migrant workers struggled, many local health services closed and cancer care was severely affected. Access and availability of healthcare services was better during the second wave. During both waves, FBHs provided care for non-COVID patients, earning community appreciation. For HCPs, the first wave entailed preparation and training; the second wave was frightening with scarcity of hospital beds, oxygen and many deaths. Eight of the 10 FBHs provided COVID-19 care. PC teams adapted services providing teleconsultations, triaging home visits, delivering medications, food at home, doing online teaching for adolescents, raising funds. Strengths of FBHs were dedicated teamwork, staff care, quick response and adaptations to community needs, building on established community relationship.Conclusion FBHs remained open and continued providing consistent, good quality, person-centred care during the pandemic. Challenges were overcome innovatively using novel approaches, often achieving good outcomes despite limited resources. By defining and redefining quality using a PC lens, FBHs strengthened patient care services.
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页数:9
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